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andihodges18

What a WEEK!! (And it's just Wednesday AM)

Updated: Jan 4

Wow, what a week!!! And yes, I'm saying this at 10am on a Wednesday morning. Behaviors have been skyrocketing since Thursday and I have NO idea what the trigger is. Monday, we had a pre-op doctor's appointment for Brayden's upcoming surgery on the 28th and that was the first time I have experienced the significant mom shame that comes with meltdowns in public. It started the minute we got to the office (where I used to work actually). I went to print off his H&P paperwork and he took off. Then when redirected I was met with the blood-curdling, high pitched screams....you know, the ones that alert the ENTIRE universe that Mom is doing something wrong? Yup that was Monday morning. He managed to thwack the doctor with his rubber alligator across the face, then when we went outside to leave, he ran across a rock garden and into the parking lot before I could grab him. Why is it these children have the uncanny ability to not fall so Mom can catch up? The entire morning was spent this way so I cancelled his afternoon therapy to let him just chill and take it easy. I guess his outpatient therapy went close to the same way.


Another thing that I want to RANT about I guess is how a government can dictate what your child needs and what is best for them. I am NOT a political person but I have a feeling this is going to be changing more and more as I advocate for my kiddos. My child did not CHOOSE to be born as a neurodiverse child and be labeled. While being labeled as a disability certainly has some benefits, they forget how this label also affects their ABILITIES. The biggest fear I have with my youngest is the eloping factor. I am scared to DEATH of him running off on me and getting lost and not being able to find him until it is too late. We applied for the coverage of a service dog that would help prevent this from happening along with being a part of his daily routine for sensory and calming. Our claim was denied as it's considered "restrictive". A fenced in yard could be considered "restrictive", so could a stroller. However, this service animal would allow Brayden to participate in normal child activities that neurotypical children participate in while still providing that safe haven. Why must there be so many barriers put in place? Why must we struggle to advocate for something any normal family would be able to do? I want him to be able to experience as MUCH as possible in life, and if this one thing can last years and help him, why deny the coverage for something that will last for quite a bit of time and have MULTIPLE purposes? UGH!!!! Okay, rant over.....for now.

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